The Life and Suffering of a Butterfly Child (12 pics)

sad -- is there a cure?

I've never heard of this. How horrible.

Thats the first time I read about it too, that's really sad.

Very sad...

just google it - no, there is no cure for now, but it's working on it...

"....The skin has two layers; the outer layer is called the epidermis and the inner layer the dermis. In normal individuals, there are protein anchors, made of collagen, between the two layers that prevent them from moving independently from one another (shearing). In people born with EB, the two skin layers lack the protein anchors that hold them together, and any action that creates friction between the layers (like rubbing or pressure) will create blisters and painful sores. Sufferers of EB have compared the sores with third-degree burns...."

holy dick shit

Dang!! That's terrible!! The second picture was all I needed to see thanks!!

poor kids

My heart goes out to the wee darlings.

wow, must be horrible to have pain caused by everything. drugs?

This sounds really like a horrible disease. I hope there is a cure, because feeling constant pain is awful.

oh my, i really hope they find a cure soon...

Oh shit..

So creative and Sooo sad.

zz zz zz

That's awful.